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Chronic fatigue syndrome target of new research campaign

There are many diseases that researchers continue to struggle over. These diseases often have yet to be linked to a cause and as yet, lack any kind of cure or effective treatment. For people in Laurel, Maryland, who struggle with these disabling diseases, it can be a frustrating challenge. They may be left unable to work and even face criticism from others over the validity of their condition.

One of these diseases is chronic fatigue syndrome, which up to 2.5 million Americans suffer from. However, a group of scientists and patient advocates is hoping to find answers for these patients through increased research funding. The challenge for researchers has been obtaining the funds needed to thoroughly study the syndrome, which faces skepticism over whether it is a real disease. Patients may appear to be in good health but those who have it the worst are unable to get up or leave their home.

If the group is successful, the disease would be included as part of a piece of legislation called the 21st Century Cures Bill. This would give researchers more than the current yearly funding of $5.4 million, hopefully boosting it up to the same range as HIV/AIDS research and multiple sclerosis, which received $3 billion and $103 million respectively this year. The group is also trying to move the disease to the control of the National Institute for Neurological Disorders and Strokes. It is currently under the direction of the U.S. Department of Health and Human Services.

Chronic fatigue syndrome is considered a disabling condition according to Social Security and suffers may be eligible for financial assistance. People who have questions may find it helpful to meet with a Social Security lawyer.

Source: Science Magazine, “Lobbyists seek new funds for chronic fatigue syndrome research,” Emily Underwood, Aug. 17, 2015

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